So I've been on various chinese herbal medicines for about 3 months now. At the moment I'm on Xi Yang Sen and Ling Zhi (which my boyfriend curiously tells me that they're the spitting image of magic mushrooms)! I have to put them in my tea, and drink about 5 cups a day - eeeeeasy! It's costing £60 a month, but after a depressing year of canceling plans and having to take it boringly easy, anything that will give me some of my energy back is worth the world and more to me!
On a good day, I have up to 50% more energy, and could not be happier!!! Before developing M.E, I had two friends who had it. Unfortunately, one of them came face to face with old fashioned accusations such as "You're only attention-seeking", "she's just depressed". Thankfully, I haven't had to deal with as much of this nonsense.
It takes a year before you can be officially diagnosed. As soon as the anniversary came around, I got put onto the NHS waiting list, and will start seeing a specialist from June 10th!
I was amazed when I saw BRMC a month ago, and was able to mosh about without feeling too dead the next day (despite having a neck that felt like it was about to snap!) The gig was followed by a few calm days. But 3 months ago, it was looking like I'd have to either sell the ticket, or spend the following 2/3 days resting and canceling any plans.
So this weekend is a step up of a challenge - I'm off to Great Escape! Well, I should be leaving for Brighton right now, as it starts tonight. But I need to be realistic. I don't have the energy to party 3 nights in a row. I'm hoping I can do two though. That'll be a wonderful sign that I am getting better!
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